Fashion model Louis Vederburn since her birth suffer form a rare genetic disorder due to which her muscles  turn into bones. This teen does not allow the disease to prevent to live the life as she wants. From this disease in the world suffer around 700 people and statistics show that they usually have a short lifespan. It's a matter of time when this young girl will remain forever frozen in one position, and will be condemned to a wheelchair.
Lucy, who loves fashion and plans to try as a stylist or make-up, shot a documentary film "The Human Mannequin". "My wish is that more people learn about this disease, because it's not common and everyone speaks for it very little. I would like to show people how important it is not to allow the disease to kill their passion for life and their dream, "said the brave 19-year-old girl.